各位网络上的朋友们：
国内著名的变形金刚专题网站TFCLUB站长星星叫（冯明）幼年即身患肾病。自1995年以来一直依靠透析来维持身体机能正常运转。自1995年以来，他以顽强的毅力与病魔抗争。但是由于长期通过血管进行透析治疗，星星叫于数日前出现了严重并发症，且可以进行透析的血管均出现堵塞等问题无法继续透析，生命危在旦夕！！据治疗专家称，需要做导管植入方可继续治疗。但星星叫需要植入的长度超出常规（超过60cm），国内外都史无前例，专家们始终没能找到突破性的资料。通过大家的共同努力，目前导管已经找到，正在运送途中（虽然此方案是否最终采用仍需要视病情发展而定，但这无疑是一个好消息！）。
但与此同时，昂贵的手术费又成为横在星星叫面前的一道严重障碍！在过去的11年里，星星叫一直在依靠自己的能力顽强拼搏，努力工作，用自己的双手来赚取必须的医疗费用。但是如今，他已经久卧在床无法工作，他的母亲因心脏病卧床多日，他的父亲也年过七十，且健康状况不佳，这个三口之家甚至在广州当地举目无亲！在这样的情况下，他们已经没有足够的经济能力面对新的手术考验。
做为一名变形金刚的爱好者，星星叫以惊人的毅力，自1999年起投入到复兴变形金刚文化的梦想中，并且为之奋斗了整整7年之久。没有他的努力，也许就不会有现在的TFCLUB，不会有今天网络上蓬勃发展的变形金刚文化，我们钦佩他的精神，敬重他的为人。我们随时关注着他的病情，希望他能够快乐地继续与我们一起前进。
以往，星星叫不愿意接受朋友们的资助，他始终顽强地依靠自己的力量来支撑着。但是这次，他个人的力量在病魔面前已经显得力不从心！
时间紧迫！让我们大家伸出援手，来帮助我们的朋友吧！在此，让我们伸出的援助之手，帮助星星叫度过难关！
滴水汇成江河，我们相信，大家的帮助将会成为支持星星叫战胜病魔的有力武器！
经与星星叫及其家人协商，由星星叫的女友开设一个专门的账户，愿意参与捐款的朋友，可以直接将款汇至此账户。
捐款具体办法：
请大家汇款至此账号——9558 8036 0210 6717184 傅晓梅 广州市工商银行东华东支行
病塌上的星星叫 摄/铁皮 附：冯明相关情况
冯明 男 1978年6月16日出生 汉族 广州人
Feng， Ming
Gender： Male D.O.B： June 16th 1978 Nationality： China People： Han Residency： Guangzhou
主要病史Main case history：
7个月左右被发现患有双肾母细胞瘤作手术切除全部右肾及2/3左肾手术成功肾功能残余1/6左1/3肾代偿良好
About 7 months old：Wilm‘s tumor （nephroblastoma） detected in both kidneys； the whole right kidney and two thirds of left kidney operated with nephrectomy. After this operation， only one sixth of the kidney function left； one third of the left kidney worked well.
童年先后做过两次引睾手术
Childhood：“Undescended testis”， operated twice；
1995年10月开始出现浮肿肾性高血压慢性肾炎等症状入院保守治疗
October 1995：Some symptoms occurred， including dropsy， kidney hypertension； chronic nephritic syndrome etc； treated in hospital.
1995年11月急性阑尾手术切除手术成功但肾脏进一步损坏需要进行透析治疗于右锁骨下静脉插管进行透析同时在左手肱动脉造瘘以长期透析手术成功瘘使用后插管拔除但穿刺一直比较困难需要专人定点穿刺
November 1995：Acute appendicitis， operated successfully； but the kidney was further damaged； must be treated with hemodialysis： a catheter was plugged into the vein below the right clavicle for hemodialysis； meanwhile， a native av fistula was developed in the humerus artery of the left hand for long-term dialysis； the operation was successful； after the catheter was unplugged， the fistula worked well， but the piercing was always pretty tough， which needed assistance from specialists.
1998年8月左手形成假性动脉瘤手术切除成功活检发现瘤为钙化纤维物质瘘仍然能使用但左手开始逐渐浮肿不消
August 1998：A pseudo-aneurysm found in left hand， which was operated successfully； the tumor was identified as calcified fibers； the fistula still worked but the renal edema on the left hand became worse
2004年8月左手肿胀严重无法穿刺透析于右颈内静脉插管进行透析同时手术结扎左手的瘘在右手肱动脉造瘘手术后右手持续不消肿后经造影检查发现右边锁骨下静脉狭窄导致回流障碍于左颈内静脉插管进行透析
August 2004：The renal edema on the left hand made the piercing-dialysis undoable； a catheter was plugged into the vein in the right neck for dialysis； the fistula in the left hand was ligated； another fistula was developed in the humerus artery in right hand； after the operation， the right hand swelled all the time； inspection figured that the narrowness of the vein below the right clavicle prevented the refluence of blood； a catheter was plugged into the vein in the left neck for dialysis
2005年11月左颈静脉插管堵塞于右颈静脉插管透析同时在左大腿大隐静脉接股动脉造瘘手术成功结扎右手瘘手术不成功右手情况恶化
November 2005：The catheter in the vein in the left neck got congested； the catheter was moved to right neck for dialysis； a traumatic arteriovenous fistula was developed at the intersection of the left thigh vein and left thigh artery； the operation was a success； however， the fistula in right hand was ligated unsuccessfully； right hand got even worse；
2006年3月右手再次结扎手术手术成功尝试插管但不成功大腿瘘开始穿刺使用疼痛异常穿刺难度也很大
March 2006：The fistula in right hand was ligated again； the operation was a success； a catheter was tried but not successful； the fistula on the left thigh was used for piercing-dialysis； the piercing was pretty touch and very painful；
2006年12月左大腿形成假性动脉瘤并引发大出血手术止血手术成功但瘘被结扎目前休养中目前依靠右手动脉直接穿刺来透析无法保证每次穿刺成功一旦不成功将无法透析
December 2006：Another pseudo-aneurysm found in left thigh， which resulted in massive haemorrhage； the haemorrhage was stopped but the fistula was ligated；At present， the dialysis is conducted through direct piercing of the artery in right hand； the success of piercing cannot be guaranteed； once fails， the dialysis will be undoale.
主要问题
- 无法再造瘘双手及左腿都已做过右腿再做风险太大；
- 插管困难：颈内静脉由于插过多次已产生疤痕狭窄，尝试过再插不成功。右边锁骨下静脉已知狭窄不行。左边锁骨下静脉离心脏太近，左股静脉已伤，右股静脉只可插临时管道，长期置管则无法达到足够长度且容易堵塞及感染影响行动。
Main issues：
- Unable to develop native fistula: fistulae made on both arms and left leg but all failed; too risky to take the right leg；
- Difficult to plug in the catheter: the vein inside the neck has been plugged so many times that it is too narrow to use, the vein below the right clavicle is also too narrow, the one under the left clavicle is too close to the heart. The vein in the left thigh is damaged; the one in the right thigh can only allow temporary catheter. Long-term catheter is not long enough and gets congested and infected easily, which will constraint the motion of the body.
主要求助
- 长期置管的手术技术及术后日常护理经验；
- 长期置管的器材选择。
Assistance needed in the following：
- Operation techniques of long-term catheter implanting; experience of post-operation nursing;
- Selection of long-term catheter types.
说明：
- 本人腹部手术多无完整腹膜不能进行腹膜透析
- 群体抗体过高（PRA）无法进行肾移植配型
- 丙肝病毒携带者（HCV+）
- 一些数据；血色素长期为8-9克现在手术后仅为7克左右；血压偏高平均200-220/100-120（下肢）Yao物控制效果不强低于150/80就会晕厥；先锋4先锋6过敏；酒精过敏；虾蟹过敏；（输液管过敏：此点最重要每次输液必须把管道内空气完全排空并用生理盐水清洗）
Notes：
- The patient's abdomen has been operated many times;
- the peritoneum is incomplete， therefore peritoneal dialysis cannot be conducted;
- High PRA， matched kidney transplant operation is not suitable;
- HCV+ carrier;
- Some useful data: Long term heme protein is 8-9 grams; after operations, it falls to 7 grams approximately； blood pressure is high, on average 200-220/100-120 （lower limbs）; medicine control doesn't work well; if the blood pressure falls lower than 150/80, the patient will faint; allergic to Cefalexin and Cefradine; allergic to alcohol, shrimps and crabs; allergic to transfusion tube, which means before each transfusion, the air in the tube must be exhausted and the tube itself must be cleaned with physiologic brine;
acute appendicitis急性阑尾炎chronic慢性hemodialysis血透aneurysm动脉瘤（partial）nephrectomy（部分）肾切除术nephroblastoma（Wilms‘s tumor）肾母细胞瘤renal edema肾性水肿traumatic arteriovenous损伤性动-静脉造瘘 |
|小黑屋|手机版|Archiver|Nw壬天堂世界
( 京ICP备05022083号-1 京公网安备11010202001397号 )
发表于 2007-1-5 16:23:01
提升卡
变色卡
显身卡
楼主
